Citizens' Access to Their Digital Health Data in Eleven Countries - A Comparative Study.
Identifieur interne : 002223 ( Main/Exploration ); précédent : 002222; suivant : 002224Citizens' Access to Their Digital Health Data in Eleven Countries - A Comparative Study.
Auteurs : Christian Nohr [Danemark] ; Ming Chao Wong [Australie] ; Paul Turner [Australie] ; Helen Almond [Australie] ; Liisa Parv [Estonie] ; Heidi Gilstad [Norvège] ; Sabine Koch [Suède] ; Gu Rún Au Ur Har Ard Ttir [Islande] ; Hannele Hyppönen [Finlande] ; Romaric Marcilly ; Aziz Sheik [Royaume-Uni] ; Karen Day [Nouvelle-Zélande] ; Andre Kushniruk [Canada]Source :
- Studies in health technology and informatics [ 0926-9630 ] ; 2016.
Abstract
Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.
PubMed: 27577472
Affiliations:
- Australie, Canada, Danemark, Estonie, Finlande, Islande, Norvège, Nouvelle-Zélande, Royaume-Uni, Suède
- Jutland du Nord, Svealand, Trøndelag, Écosse
- Aalborg, Stockholm, Trondheim, Édimbourg
- Université d'Aalborg, Université d'Édimbourg
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A Comparative Study.</title><author><name sortKey="Nohr, Christian" sort="Nohr, Christian" uniqKey="Nohr C" first="Christian" last="Nohr">Christian Nohr</name><affiliation wicri:level="4"><nlm:affiliation>Dept. of Development and Planning, Aalborg University, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Dept. of Development and Planning, Aalborg University</wicri:regionArea><placeName><settlement type="city">Aalborg</settlement><region nuts="2" type="region">Jutland du Nord</region></placeName><orgName type="university">Université d'Aalborg</orgName></affiliation></author><author><name sortKey="Wong, Ming Chao" sort="Wong, Ming Chao" uniqKey="Wong M" first="Ming Chao" last="Wong">Ming Chao Wong</name><affiliation wicri:level="1"><nlm:affiliation>School of Engineering & ICT, University of Tasmania, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>School of Engineering & ICT, University of Tasmania</wicri:regionArea><wicri:noRegion>University of Tasmania</wicri:noRegion></affiliation></author><author><name sortKey="Turner, Paul" sort="Turner, Paul" uniqKey="Turner P" first="Paul" last="Turner">Paul Turner</name><affiliation wicri:level="1"><nlm:affiliation>School of Engineering & ICT, University of Tasmania, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>School of Engineering & ICT, University of Tasmania</wicri:regionArea><wicri:noRegion>University of Tasmania</wicri:noRegion></affiliation></author><author><name sortKey="Almond, Helen" sort="Almond, Helen" uniqKey="Almond H" first="Helen" last="Almond">Helen Almond</name><affiliation wicri:level="1"><nlm:affiliation>School of Engineering & ICT, University of Tasmania, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>School of Engineering & ICT, University of Tasmania</wicri:regionArea><wicri:noRegion>University of Tasmania</wicri:noRegion></affiliation></author><author><name sortKey="Parv, Liisa" sort="Parv, Liisa" uniqKey="Parv L" first="Liisa" last="Parv">Liisa Parv</name><affiliation wicri:level="1"><nlm:affiliation>e-Medicine Laboratory, Tallinn University of Technology, Estonia.</nlm:affiliation><country xml:lang="fr">Estonie</country><wicri:regionArea>e-Medicine Laboratory, Tallinn University of Technology</wicri:regionArea><wicri:noRegion>Tallinn University of Technology</wicri:noRegion></affiliation></author><author><name sortKey="Gilstad, Heidi" sort="Gilstad, Heidi" uniqKey="Gilstad H" first="Heidi" last="Gilstad">Heidi Gilstad</name><affiliation wicri:level="3"><nlm:affiliation>The Norwegian University of Science and Technology, Trondheim, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>The Norwegian University of Science and Technology, Trondheim</wicri:regionArea><placeName><settlement type="city">Trondheim</settlement><region type="région" nuts="2">Trøndelag</region></placeName></affiliation></author><author><name sortKey="Koch, Sabine" sort="Koch, Sabine" uniqKey="Koch S" first="Sabine" last="Koch">Sabine Koch</name><affiliation wicri:level="3"><nlm:affiliation>Dept. of Learning, Informatics, Management and Ethics, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Dept. of Learning, Informatics, Management and Ethics, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Har Ard Ttir, Gu Run Au Ur" sort="Har Ard Ttir, Gu Run Au Ur" uniqKey="Har Ard Ttir G" first="Gu Rún Au Ur" last="Har Ard Ttir">Gu Rún Au Ur Har Ard Ttir</name><affiliation wicri:level="1"><nlm:affiliation>Dept. of Health Information Management, Directorate of Health, Reykjavik, Iceland.</nlm:affiliation><country xml:lang="fr">Islande</country><wicri:regionArea>Dept. of Health Information Management, Directorate of Health, Reykjavik</wicri:regionArea><wicri:noRegion>Reykjavik</wicri:noRegion></affiliation></author><author><name sortKey="Hypponen, Hannele" sort="Hypponen, Hannele" uniqKey="Hypponen H" first="Hannele" last="Hyppönen">Hannele Hyppönen</name><affiliation wicri:level="1"><nlm:affiliation>Dept. of Information, National Institute for Health and Welfare, Helsinki, Finland.</nlm:affiliation><country xml:lang="fr">Finlande</country><wicri:regionArea>Dept. of Information, National Institute for Health and Welfare, Helsinki</wicri:regionArea><wicri:noRegion>Helsinki</wicri:noRegion></affiliation></author><author><name sortKey="Marcilly, Romaric" sort="Marcilly, Romaric" uniqKey="Marcilly R" first="Romaric" last="Marcilly">Romaric Marcilly</name><affiliation><nlm:affiliation>INSERM CIC-IT 1403, Univ. Lille Nord de France, CHU Lille, UDSL EA 2694.</nlm:affiliation><wicri:noCountry code="subField">UDSL EA 2694</wicri:noCountry></affiliation></author><author><name sortKey="Sheik, Aziz" sort="Sheik, Aziz" uniqKey="Sheik A" first="Aziz" last="Sheik">Aziz Sheik</name><affiliation wicri:level="4"><nlm:affiliation>Centre of Medical Informatics, University of Edinburgh, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Centre of Medical Informatics, University of Edinburgh</wicri:regionArea><placeName><settlement type="city">Édimbourg</settlement><region type="country">Écosse</region></placeName><orgName type="university">Université d'Édimbourg</orgName></affiliation></author><author><name sortKey="Day, Karen" sort="Day, Karen" uniqKey="Day K" first="Karen" last="Day">Karen Day</name><affiliation wicri:level="1"><nlm:affiliation>School of Population Health, The University of Auckland, New Zealand.</nlm:affiliation><country xml:lang="fr">Nouvelle-Zélande</country><wicri:regionArea>School of Population Health, The University of Auckland</wicri:regionArea><wicri:noRegion>The University of Auckland</wicri:noRegion></affiliation></author><author><name sortKey="Kushniruk, Andre" sort="Kushniruk, Andre" uniqKey="Kushniruk A" first="Andre" last="Kushniruk">Andre Kushniruk</name><affiliation wicri:level="1"><nlm:affiliation>School of Health Information Science, University of Victoria, Victoria, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>School of Health Information Science, University of Victoria, Victoria, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author></analytic><series><title level="j">Studies in health technology and informatics</title><idno type="ISSN">0926-9630</idno><imprint><date when="2016" type="published">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.</div></front></TEI><affiliations><list><country><li>Australie</li><li>Canada</li><li>Danemark</li><li>Estonie</li><li>Finlande</li><li>Islande</li><li>Norvège</li><li>Nouvelle-Zélande</li><li>Royaume-Uni</li><li>Suède</li></country><region><li>Jutland du Nord</li><li>Svealand</li><li>Trøndelag</li><li>Écosse</li></region><settlement><li>Aalborg</li><li>Stockholm</li><li>Trondheim</li><li>Édimbourg</li></settlement><orgName><li>Université d'Aalborg</li><li>Université d'Édimbourg</li></orgName></list><tree><noCountry><name sortKey="Marcilly, Romaric" sort="Marcilly, Romaric" uniqKey="Marcilly R" first="Romaric" last="Marcilly">Romaric Marcilly</name></noCountry><country name="Danemark"><region name="Jutland du Nord"><name sortKey="Nohr, Christian" sort="Nohr, Christian" uniqKey="Nohr C" first="Christian" last="Nohr">Christian Nohr</name></region></country><country name="Australie"><noRegion><name sortKey="Wong, Ming Chao" sort="Wong, Ming Chao" uniqKey="Wong M" first="Ming Chao" last="Wong">Ming Chao Wong</name></noRegion><name sortKey="Almond, Helen" sort="Almond, Helen" uniqKey="Almond H" first="Helen" last="Almond">Helen Almond</name><name sortKey="Turner, Paul" sort="Turner, Paul" uniqKey="Turner P" first="Paul" last="Turner">Paul Turner</name></country><country name="Estonie"><noRegion><name sortKey="Parv, Liisa" sort="Parv, Liisa" uniqKey="Parv L" first="Liisa" last="Parv">Liisa Parv</name></noRegion></country><country name="Norvège"><region name="Trøndelag"><name sortKey="Gilstad, Heidi" sort="Gilstad, Heidi" uniqKey="Gilstad H" first="Heidi" last="Gilstad">Heidi Gilstad</name></region></country><country name="Suède"><region name="Svealand"><name sortKey="Koch, Sabine" sort="Koch, Sabine" uniqKey="Koch S" first="Sabine" last="Koch">Sabine Koch</name></region></country><country name="Islande"><noRegion><name sortKey="Har Ard Ttir, Gu Run Au Ur" sort="Har Ard Ttir, Gu Run Au Ur" uniqKey="Har Ard Ttir G" first="Gu Rún Au Ur" last="Har Ard Ttir">Gu Rún Au Ur Har Ard Ttir</name></noRegion></country><country name="Finlande"><noRegion><name sortKey="Hypponen, Hannele" sort="Hypponen, Hannele" uniqKey="Hypponen H" first="Hannele" last="Hyppönen">Hannele Hyppönen</name></noRegion></country><country name="Royaume-Uni"><region name="Écosse"><name sortKey="Sheik, Aziz" sort="Sheik, Aziz" uniqKey="Sheik A" first="Aziz" last="Sheik">Aziz Sheik</name></region></country><country name="Nouvelle-Zélande"><noRegion><name sortKey="Day, Karen" sort="Day, Karen" uniqKey="Day K" first="Karen" last="Day">Karen Day</name></noRegion></country><country name="Canada"><noRegion><name sortKey="Kushniruk, Andre" sort="Kushniruk, Andre" uniqKey="Kushniruk A" first="Andre" last="Kushniruk">Andre Kushniruk</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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